fabulousmrsklein's Pink wedding


04/12/2008
organ-1-1
organ-1-1
My Wedding Story
♥I am waiting for a lung transplant
Only SIX months away and SOOOO much left to do!

I am starting to stress. Not just because of the wedding but because of something I have yet to write about.

I am waiting for a Lung Transplant.

I got diagnosed with PLCH when I was 21 and in my junior year of college. The PLCH is a rare lung disease that has also caused me to have Pulmonary Hypertension. I have been on the transplant list for three months now and I am currently #1 in my blood type.

After the transplant if everything goes right I will need 3 months to recover. I am starting to get worried now. Since I was at the top of the list they thought I would get called soon with lungs but time is ticking by and I still have not had any good offers (offers of matching healthy lungs).

I raise money for my illness and do a whole other blog about being young & sick (disabled) so I am not shy about sharing my story. By just looking at me no one would ever know and until the past few months I was living a somewhat normal life and being home all the time now waiting on the call has given me lots of time to blog. I am getting closer to my wedding date and I am spending more and more time on here and trying to do as much as possible for the big day so I thought I would share it with you guys. This is my reason for not yet trying on dresses or doing other things that I should be getting done right about now! :)

My fiance is fabulous and he has stuck by me from the moment we started dating (we were friends for a couple years before we started dating). He has seen me through chemotherapy to now getting a transplant (which is beyond your wildest imagination huge and extremely difficult) so if we make it to our wedding day it is going to be the biggest celebration we could ever dream of.

Thank-you for taking the time to read my blogs :) You might never know it, but sometimes there have been comments or blogs on here that have put a smile on my face when I needed one.
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jeffandcarissa
 |  Kitchener, ON, Canada  |  04/13/2008
i know how stressful waiting for a organ is. Two years ago we were in the same boat with my best friend(my mom). She needed a Kidney, and without one she could have died. We were lucky enough after all the test and what not that my aunt(her sister) was a match. So last June my mom went through with the transplant, and now she is better than she has ever been. I know everything will work out in the end for you, and i know how tough the waiting game is.
katuska
 |  London, England  |  04/13/2008
Wow!!! What can I say!! I admire you for being such a fun, bubbly girl that you are and I KNOW you'll get there very soon! Rest lots so when it happens you're gonna be strong and will come out of it even stronger and healthy. I'll talk to THE BIG MAN for you! :o)
alybrand
 |  Seattle, WA, United states  |  04/13/2008
Constance! that is an amazing story! You have been quite the trooper and I definitely admire you too for still loving life and having fun with such a weight trying to pull you down! Everything sounds like it is in order and you'll pull through just fine. My thoughts are with you. :) (FYI - If I could I'd give you my lungs, I'd have to say they are pretty healthy and happy... but my blood type is A+... Idk if that would even help you!) lol  :D
prettyinpink
 |  -, -  |  04/13/2008
Wow! What a story! Thanks so much for sharing. Big hugs and positive thoughts sent your way! I'm sure you'll get your wish very soon!
chirawan
 |  -, United states  |  04/13/2008
What an amazing story. Good luck with everything. And I love reading your blog. :-)
vsquared1011
 |  Bloomington, IN, United states  |  04/13/2008
Wow! Hang in there!  I have just been a member of this site for a couple days, but I love reading your blogs and really appreciate your comments!  You seem like a fantastic person! I'll keep you in my prayers! :-)
fabulousmrsklein
 |  Chicago, IL, United states  |  04/13/2008
thank-you guys very much :)
fabulousmrsklein
 |  Chicago, IL, United states  |  04/13/2008
& Carissa ty for sharing your moms story,

& aly... A+ is my blood type ;) but I do not want your lungs... so stay healthy :)
gratefulbride
 |  Charlotte, NC, United states  |  04/13/2008
Hang in there...with your attitude & spunk, you'll make it thru this with flying colors.  Everything will work out better than you know!!  Thanks for sharing.
marta12
 |  Chicago, IL, United states  |  04/13/2008
Wishing you good luck and health. Hang in there.
reidxrichards
 |  Antigonish, NS, Canada  |  04/14/2008
Great story and very inspirational, I wish you only the best and I hope your wedding is a beautiful as you deserve.
Denh Tsan
 |  Surrey, BC, Canada  |  04/19/2008
I just read your blog, it completely touched my heart. I know 2 people that have successful transplants ( not lungs though), but recently (like 3 weeeks ago) my FI aunt was diagnosed with Pulmonary Fibrosis and is now on a lung transplant waiting list.
Your fiance is a standup guy-Give him a hug from me! Unfortunately there isnt enough people like that in the world.
You made a comment "if we make it to our wedding day.." First of all you will definately make it and you are going to have to make room for some unexpected weddingbycolor members as we will be celebrating with you all!
Stay strong...
sexilexi110808
 |  Chicago, IL, United states  |  05/01/2008
You are in my prayers, you are stong, you will make it down that aisle and onto the rest of your life, for sure!
tawanatobride
 |  North hills, CA, United states  |  05/22/2008
I know it is stressful keep your head up.  I work as a nurse in transplant surgery in memphis, tn.  I never knew how many people have started donating.  I think it is great and hopefully everything will go well.  You are in my prayers
markell
 |  New york, NY, United states  |  05/28/2008
wow sounds like you two have been througha lot! i just wanted to say that i think you should get your dress..once that dress is hanging in your closet...it just changes everything..i dont know why, but it does. i think youd get by happier and recover faster knowing you have it. thats just me though. good luck with everything.
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