08/18/2011
Black Ask a Question nwr: baby talk, would u get a genetic test
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nwr: baby talk, would u get a genetic test

so today i found out my brother is having a baby in december, they knew they just didnt tell anyone at first...But wit that good news came bad news...they found out today that the baby will be born with spina bifidia. For those who dont kno what it is, its theres a defect somewhere between the brain and spinal cord where either the bones of the spinal colum dont fully develope and no nerves are affected or when thespinal cord doesnt completely form and nerves are affect, then a part of the spinal cord and the sac that surrounds it and protects it protrudes out from the back..theres different severities of how much is exposed to the outer part of the body and depending on this depends how sugery outcome is which also depends on whether or not u will ever be able to walk. For us this was sad news, poor unborn baby girl has a really tough life ahead of her...theres different causes and risk factors of spinal bifidia like the age of the mother the moms nutritional health ( poor nutrition is a risk, poor folic acid intake and genetics...we dont know the case here as of yet...
we plan to have a baby a year from the wedding, and I being a pediatric/ neonatal nurse know the importants of taking care of myself now to lower health risk of my future unborn..they say a year in advance to getting pregnant is when u should start taking pre natal vitamins and folic aci if over weight start loosing weight before u get pregnant ( obesity leads to major fetal health risk and risk for gestational diabetes.

i know somethings is not in our hands but whatever is ima do whatever it takes to help lower risk...ive lost weight, im not drinking alcohol im increasing my foli acid intake, eating better, excersing and more all to prepare myself for pregnancy llol...i know healthly babies are born everyday without the extreme measures im taking but if u were a pediatric/ neonatal nurse you would see how many kids are born unhealthly because of the mothers lifestyle...anyways this unfortunate situation which my unborn niece has got me upset...what will her life be like? will she be able to ever walk? will she be like some past patients of mines who had the worse case scenarios? was it cuz my brothers gf didnt take care of herself prior to pregnancy or was it genetics?

which leads me to my question? would u and ur fh ( or husband) get genetic testing done to see what genetic stuff u could pass on to ur unborns. Or would u leave it to the hands of GOD and gamble that nothing would get passed down? we have been talking about getting genetic testing done just to know whats in are genes, could spina bifidia be in mines? im not sure if i can though cuz what if theres things we have that could get passed down? u know sometimes for sum dieases and deformities if one parent is a carrier of a disease but if the other parent isnt you have nothing to worry about, but if they are two i s a for sure your child will get it. being a peds/ neo nurse ive seen so many kids wit genetic diseases and deformities that id never want to put a child through...so would u do it? im confused i want to but im scared
but in the same sense if we have nothing to pass on ill be at ease and feel better about making lots of babies.

p.s this is my brothers 4th child on its way
nwrbaby talk
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gagal81's Purple wedding
gagal81
 |  Armuchee, GA, USA  |  08/18/2011  | 
I am so sorry that your family is going through this. My thoughts and prayers will be with yall.

Honestly, I never did genetics testing. With my son I was young and didnt know all the bad that could happen. With my next I knew a little more and was more concerned. THEN my third was a huge surprise and I was worried sick. I was not prepared at all. I live a fairly healthy lifestyle. I was on birth control. But I hadnt been taking vitamins. I was almost 3 mths when I found out I was pregnant with her. I knew that the first trimester was so important. I really knew by then all the horrible things that could go wrong. I nearly worried myself sick before I realized that I had to pray and leave it in the hands of God. I wanted and needed to enjoy my pregnancy and not spend the entire time saying what if. I have 3 very healthy kids. All were born healthy.

My opinion is if genetics testing would ease your mind, then go for it. With whats going on with your unborn niece and not knowing what caused it, it may make you feel better.

Try to remember that so many more healthy babies are born than unhealthy. If you take the percentage of unhealthy babies and subtract how many came from mothers that had bad lifestyles the number drops even more.

Im not sure if that helps you at all. Again, I will be praying for your family and precious niece.
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nursekc909
 |  Riverside, CA, USA  |  08/18/2011  | 
thanks gagal, it makes me feel a little better....yes i know that theres more healthly babies born than unhealthly but working as a peds ans neonatal nurse I see all the ones born with problems some cuz the mom didnt take care of herself and others genetics, some have died and some have a really bad prognosis. So i think im more freaked out because i see the unfortunate ones every day come in and out of the hospital ( i work in a childrens hospital) so to me its common lol.im very glad u had healthly babies it truely is a blessing :) thanks for ur prayers we are hoping she will have a goid outcone and at least be able to walk :) we are praying for that
kwepie117's Red wedding
kwepie117
 |  Charlotte, NC, USA  |  08/18/2011  | 
this actually hits home to me. When  I got pregnant with my second child, I was told that I carried the trait for Cystic Fibrosis which is a horrible disease as I'm sure you are aware. My husband had to undergo testing to see if he carried it as well. They told me if he did, they would seriously recommend I terminate my pregnacy. I was devastated and it was a tense few weeks while waiting for the test results. By the grace of God, we found out he did not and that our baby girl was fine. So with that being said, I would undergo genetic testing again in a heartbeat. Its better to know and decide before you have a child than to find out that you might not have as much time with your baby as you thought while carrying.
nursekc909's Black wedding
nursekc909
 |  Fontana, CA, USA  |  08/18/2011  | 
oh wow kwepie! i am so happy for u that ur husband wasnt a carrier of it...that is a very devastating disease for a child to have. I def would not wanna put a child through life with CF, i did my evidence based practice for pediatrcs in nursing school on it and havevhad a few patients with it, and its a very sad disease ( as any is) .so im glad to hear that it ended up well for u...u are so right though about better knowing before than later because it is heart breaking news to know ur child might not live past u...i face that everday at work and it is a real tough situation...i think we just might do it then hubby is all for it...thanks for the comment :)
princesni's Pink wedding
princesni
 |  Luanda, Luanda, Angola  |  08/19/2011  | 
SO SORRY FOR whats happening with ur brother...  am not sure if i would do the test but imknow the smatrtest thing is to do it so if theres any thing u can do to avoid bad things then u know what to do.
nursekc909's Black wedding
nursekc909
 |  Fontana, CA, USA  |  08/30/2011  | 
thanks princesni, and yes your are right it would be the smartest thing =)
ccg0924's Orange wedding
ccg0924
 |  Chicago, IL, USA  |  09/02/2011  | 
I am sorry to hear about the baby but at the same time I believe that God puts these children in the arms of ones who will really care and make sure they can provide the best they can. You being a nurse is a great blessing for them to have for questions and support.
We did not get any testing done with either of our boys and thankfully we had 2 healthy wonderful joys of life. But  We went into the pregnancies knowing that regardless we would love and care for them and do anything and everything in our power to make sure they lead a good life. I think for us that if we did a test and found out something negative it would only cause me to stress and harm the baby more because of that.
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